- Accepting the Gift is run by Catholic special needs parents just like you.
We know first hand the unique challenges that come from parenting a child with special needs. We are the parents of children with autism, learning disabilities, genetic conditions, physical disabilities, and everything in between. We're sharing our stories, advice, and encouragement to help you not only survive, but thrive, and find JOY, in your vocation as a special needs parent. We see you. You are not alone.
You can join their Facebook Group, https://www.facebook.com/groups/acceptingthegift and Instagram group, https://instagram.com/acceptingthegift?utm_medium=copy_link , where they connect families. They have been praying the rosary a few times a month on Instagram and they will soon be releasing a new curriculum for home-based religious education. Check them out.
The ARC of Iowa
A statewide advocacy organization of parents and others representing people with intellectual and other disabilities. Chapters throughout Iowa offer a variety of services dedicated towards advocating for people with intellectual and developmental disabilities.
ARC's Virtual Program Library is resource for people with intellectual and developmental disabilities (IDD) and their caregivers can find and share on-demand activities that they can use whenever it is convenient for them in the comfort of their own homes. Service providers can also find and share resources that they can use to facilitate or deliver live, remote programming for people with IDD.
ASK Resource Center
We are the state of Iowa's Parent Training and Information Center for families of children with disabilities. We are a family-focused nonprofit organization whose mission is to empower families by providing innovative and collaborative resources, training, advocacy, and support.
Assistive Technology Center
The Easterseals Iowa Assistive Technology Program helps Iowans learn about and access the assistive technology (AT) they need as part of their daily lives to learn, work, play and participate in community life safely and independently. Services include durable medical equipment loans, demonstration center, lending library, and Iowa Assistive Technology Exchange.
Rural Solutions represents their only hope of returning to farming and their communities. Easterseals Iowa offers agricultural work site and home modification consultations, peer support, services for the family, information and referrals, and medical equipment loan services.
Best Buddies International is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development, and inclusive living for individuals with intellectual and developmental disabilities (IDD).
Books Beyond Words
Beyond Words is an organization that helps people who can’t read or who don’t like written words are often very good at reading pictures. That’s why there are no words in our picture stories.
Our books all tell a story, but they also let the reader tell their own story – the one they see in the pictures. This can tell you a lot about a person’s inner world and their understanding of situations. There is plenty to talk about and each story explores feelings and relationships as well as giving information. All the pictures used in our books are tested by people who find pictures easier than words, to make sure they are easy to understand.
The books help to remove barriers. For someone who struggles with words, there are a lot of barriers to getting the right health or social care and support. Even when a person with a problem reaches someone who can help, like a doctor, a social worker or a therapist, there can be communication problems and anxieties on both sides. By telling the whole story in pictures, each Books Beyond Words narrative gives people the chance to work together and explore different types of situations:
· everyday opportunities and experiences
· things that are about to happen, like going to hospital or appearing in court
· life decisions, like having a relationship or agreeing to an operation.
· things that have already happened, like abuse or losing someone you love
They also offer a Beyond Words Story App that is a fast and convenient way to access pictures that will help enable the people you care about to explore and understand their world and the things that affect their lives. The app brings together 1800+ pictures and 400 short stories taken from the Books Beyond Words series, and makes them all available to browse in one place.
This unique and easy-to-use mobile tool provides supporters with a comprehensive library of resources that offer people with learning disabilities opportunities to better understand situations, make informed decisions, explore their feelings and emotions, and share their own experiences.
CDC Disability and Health Overview
Definitions on what is a disability and the three dimensions of impairment, activity limitation and participation restrictions and includes links to additional resources including links that provide information from CDC’s National Center on Birth Defects and Developmental Disabilities on certain disability-related health conditions. You can also find a resource of Disability and Health Infographics with statistics on titled: "Disability Impacts All of Us."
Collaborative on Faith and Disabilities
The mission of the Collaborative on Faith and Disability is to support people with disabilities, their families, and those who support them by providing national and international leadership in the areas of research, education, service, and dissemination related to disability, religion, and inclusive supports.
The Collaborative was launched with eight University Centers of Excellence for Developmental Disabilities (UCEDD’s). Twelve UCEDDS are now involved. Members have collaborated by presenting at national conferences, crafting grant proposals, supporting the initiatives of its members (e.g., the Summer Institute on Theology and Disability), developing courses in collaboration with seminaries, designing internships for LEND trainees interested in spiritual supports, and webinars.
Disability Resource Library
The Disability Resource Library (DRL) is a resource for people of all ages with disabilities of all kinds. It is also a resource for families, and for the service providers with whom they work. DRL collections focus on information for, by, and about people with disabilities. Materials come in a variety of formats -- books, DVDs, training curricula, software, and assistive technology. About 60% of the materials you'll find in the DRL are not found in any other SILO (State of Iowa Library Organization) library. You can borrow materials in person or by mail.
Disabled World is an independent disability community established in 2004 to provide disability news, reviews, and information for people with disabilities, seniors, and their family and/or caregivers.
People with disabilities are the largest minority group any person can join at any time - and due to accidents and old age eventually do. In fact, disability will affect the lives of everyone at some point during their life and it is time society changed to acknowledge this.
The primary focus of Disabled World is to present information received from world governments, educational institutions, disability organizations, and their own exclusive stories.
Health Matters Program
HealthMatters™ Program is an evidence-based health promotion program for people with intellectual and developmental disabilities (IDD) and their supports in health-friendly communities. Through the HealthMatters™ Program, we engage people with IDD and their supports to have access to research, education and training, service learning, and evaluation tools to improve their health where they live, work, learn, and play.
They have a virtual coach training program for the HealthMatters program to provide training to providers and front line staff to learn strategies and materials to support healthy options and choices among people with intellectual and developmental disabilities (IDD) during and after the COVID-19 pandemic.
Introduction to Grief and Loss for People with IDD
The above article is provided by the National Apostolate for Inclusion Ministry (NAflm) an organization that in 2013 partnered and joined forces with NCPD and continue its ministry as a Council on IDD within NCPD. NCPD also has an additional resource on this topic called When Persons with Intellectual Disabilities Grieve.
Iowa Compass Resource Database
Iowa Compass connects people with disabilities and complex health-related needs to services and supports in their communities throughout Iowa.
Iowa Developmental Disabilities Council
Our purpose is to assure that individuals with developmental disabilities and their families participate in the design of and have access to needed community services, individualized supports and other forms of assistance that promote self-determination, independence, productivity and integration and inclusion in all parts of community life. We achieve this through engaging in advocacy, capacity building and system change activities.
Iowa's Independent Living Council
State connection to Iowa’s six Centers for Independent Living (CIL). Centers provide services in areas of information and referral, peer support, independent living skills development, individual and systems advocacy and transition services.
Iowa's University Center for Excellence in Developmental Disabilities
As Iowa's University Center for Excellence in Developmental Disabilities (UCEDD), the Center for Disabilities and Development (CDD) shares the vision of "a life in the community for everyone." We partner with Iowans with disabilities, their family members, providers, state and local agencies, and many others to improve the health and full community participation of persons with disabilities, and to advance the community supports and services on which they rely. We work towards our goals through University training, community training, technical assistance to state and local agencies/organizations, clinical services and direct community supports, research and policy analyses, and information sharing.
They provide training for health care providers to communicate effectively with their patients with disabilities to healthcare training programs around the state.
Key Ministries mission is to promote meaningful connection between churches and families of kids with disabilities for the purpose of making disciples of Jesus Christ. Our ministry was founded to help churches minister to families of children with hidden disabilities. We find ourselves uniquely called and positioned to serve churches seeking to become more intentional and effective in ministry with children, teens and adults impacted by mental illness, trauma, and developmental disabilities and their families.
Living Well Iowa
Helping Iowans with disabilities achieve and maintain an optimal level of wellness in order to lead a full life. Prevention and a healthy lifestyle enables people with disabilities to learn, work, and live actively in their communities. The site includes information, tools, and resources related to healthy living, inclusive community wellness and preventative health care for use by Community Public Health and Wellness Providers, Disability Service Providers, Health Care Providers and People with Disabilities.
Mental Health and Developmental Disabilities National Training Center
The Mental Health and Developmental Disabilities (MHDD) National Training Center is a collaboration between the University Centers for Excellence in Developmental Disabilities at the University of Kentucky, University of Alaska Anchorage, and Utah State University. Established in 2018 through funding provided by the Administration for Community Living, we work to improve mental health services and supports for people with developmental disabilities. By serving as a national clearinghouse, we help provide access to the most current evidence-based, trauma-informed, culturally responsive practices that address the mental health needs of individuals with developmental disabilities.
They are committed to promoting access to quality mental health care for individuals with developmental disabilities. This is available through accessible online training content that centers around the needs and voices of individuals with disabilities. Their are training modules for providers and clinicians to learn more about working with people with disabilities in order to reduce treatment barriers and increase accessibility for all. And modules for individuals, families and Direct Supports to learn more about the basics of mental health conditions in the following modules.
National Dissemination Center for Children with Disabilities
The National Dissemination Center for Children with Disabilities site is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22). It provides information and makes referrals in areas related to: Specific disabilities, Early intervention, Special education and related services, Individualized education programs, Family issues, Disability organizations, Professional associations, Education rights, Transition to adult life and much, much more!
National Task Group on Intellectual Disabilities and Dementia Practices
The National Task Group on Intellectual Disabilities and Dementia Practices ‘NTG’ is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia – as well as their families and friends – are taken into account as part of the National Plan to Address Alzheimer’s Disease.
The NTG's overall mission is to advocate for services and supports for people with intellectual disability and their families who are affected by Alzheimer's disease and dementias.
Nourish for Caregivers
Nourish for Caregivers is a Christ-Centered program and resources to support family caregivers. This 501(c)(3) nonprofit was created to improve the health and spiritual well-being of family caregivers...they provide faith-based programs and resources to churches and organizations to support caregivers. Our mission is to equip churches to create a spiritual home that ministers to the practical, emotional and spiritual needs of caregivers, giving them the tools and resources to help caregivers connect with their faith and encounter Christ, so that they can see the grace and blessings in their caregiver journey.
Come to me, all you who labor and are burdened, and I will give you rest. Matthew 11:28
Self Care and Soul Care for the Caregiver Podcast
Being a Special-needs parent can feel lonely. Sandra provides support and encouragement for special-needs parents so they know they aren't alone on this journey. As caregivers, self care isn’t optional. We have to take care of ourselves so we can care for those who depend on us! My view of self care isn’t about self-sufficiency, self-fulfillment, or self-righteousness—it’s about dependence on God. You weren’t created to live a life of exhaustion, excuses, or extreme mood swings. You were created to abide in Christ.
Self Care and Soul Care for the Caregiver is purposeful and practical. It doesn’t add more to your to-do list—it transforms your to-do list for better fulfillment and efficiency. I hope you’ll listen, and that it will be a blessing to you!
A resource for youth and young adults with disabilities, their families and the professionals who support them. The resources found here encourage high expectations and successful outcomes for all students.
Volunteer Support Services
Consider setting up a Volunteer Support Services organization in your community. Grimes, Dallas Center, Urbandale and Woodward-Granger utilize a model for a volunteer organization that provides transportation and other services without charge to those in need. Their focus has always been "neighbors helping neighbors". Set up a volunteer support services organization like these to serve neighbors in need in your community.
Weather Safety Materials for Individuals with Intellectual Disabilities
National Oceanic and Atmospheric Administrator (NOAA) has created symbol-supported weather safety content has been transformed into a symbol-supported text specifically for individuals with intellectual disabilities. Lightning, heat, flood safety, wildfires, cold and tornadoes and their accompanying safety precautions are discussed throughout the materials. By covering a wide range of weather categories, one can be certain individuals in all geographical areas can have life-saving information that is relevant to them, as well as information that can help them better understand complex concepts and new details and information.
These materials will help to educate individuals with disabilities on dangerous weather conditions in their area and the important safety precautions that come with them, which in turn, will ensure their safety and well-being and create a Weather-Ready Nation for all.